Just because I'm a hypochondriac doesn't mean I'm not sick

Posted on Wednesday, June 11, 2008 8:03 AM PT

"For each ailment that doctors cure with medications (as I am told they do occasionally succeed in doing) they produce 10 others in healthy individuals by inoculating them with that pathogenic agent 1000 times more virulent than all the microbes - -the idea that they are ill."

-- Marcel Proust, “The Guermantes Way”

Dr. Billy Goldberg:
This quote came to mind after a particularly grueling weekend in the ER.  You see, I am just getting over a brief yet vicious bout of nosophobia. Nosophobia refers to a morbid fear of contracting a disease. In my case, I was terrified of about 37 different ailments that might strike me or one of my family members down.  It didn’t help that when I got home from the hospital I had to spend an hour convincing my sister that she didn’t have thyroid disease, liver failure or metastatic cervical cancer.  My sister and I both share a genetic predisposition towards worrying that isn’t exactly helped by my practice of medicine.


Surprisingly, most doctors aren’t hypochondriacs.  But medical students often go through a phase of thinking they have everything they learn about in school. I can recall sitting in a genetics lecture with a pregnant friend and watching her cringe and rub her belly as we learned about every horrendous ailment that might affect her unborn child. This condition has been called "medical student's disease," "hypochondriasis of medical students" – and best of all, "medical studentitis." 

Some studies suggest that as many as 80 percent of med students suffer from unfounded fears of illness. The prevalence of true psychiatric hypochondriasis among regular folks has been estimated to be as high as 10.7 percent. This number strikes me as low, probably because it doesn’t include people like me who have occasional episodes of hyponchondriacal thought.

Most medical students recover from their “medical studentitis” and join the legions of doctors who ignore their own medical illnesses and scoff at their patients who have unfounded fears. Unfortunately, I am prone to relapse.  Where does all this leave me? I have no idea, but I sure would like to forget my sister’s fears, that 5-year-old who came into the ER with newly diagnosed leukemia and that funny lump that I have on my own leg.

Mark Leyner:
Hypochondria is a Möbius strip to me.  I can’t tell where it begins or ends, or, conceptually, what’s the inside and what’s the outside of it. So, it produces a kind of vertigo. Or maybe I just think I have vertigo.

Isn’t there a profound truth to thinking that we’re sick all the time? The reality is that once we’ve outlived our prime procreative days, we begin to inexorably degrade. Our very bodies become constant reminders of our own mortality.

Isn’t hypochondria, actually and paradoxically, an illness in and of itself?  It’s included in the category of somatoform disorders in the Diagnostic and Statistical Manual of Mental Disorders (DSM-IV), the reference handbook used by clinicians to guide the diagnosis of mental disorders. Some experts argue that hypochondriasis shares many features with obsessive-compulsive disorder or panic disorder and would be more appropriately classified with the anxiety disorders.

So, thinking you’re sick when you’re not is … sick.  Hmm.

Our society’s ingrained hostility to hypochondriacs clearly demonstrates how arbitrary cultural judgments can be. Certain delusions are more disreputable than others. We denigrate hypochondria – the delusion of being ill when one is well. But we laud sick people who think they’re well – it’s evidence of a brave and gritty optimism. Stupid people who maintain the delusion that they are smart tend to be intolerable. But smart people who insist that they are stupid display wonderful humility and charm. And even in the pecking order of bogus invalids, hypochondriacs rank above the malingerers, who knowingly feign illness or other incapacities in order to avoid work.

As a child, I was elaborately schooled in the fine art of hypochondria.  Hypochondria was to my family what skiing or folk-dancing was to other families – a traditional pastime that stretched back for generations. Dinner conversation inevitably turned to someone’s bloody sputum or lumpy testicle. It was like a never-ending borscht-belt production of Munchausen syndrome (the epic Wagnerian version of hypochondria).

Here are some of the conditions, diseases and tumors I’ve thought I’ve had just over the past two months:  oligodendroglioma, arrhythmia, bladder cancer, skin cancer, cirrhosis of the liver, syphilis, Crimean-Congo hemorrhagic fever, Creutzfeldt-Jakob disease, anaphylactic shock from dust-mite allergies, some teratological malformation of the alveolar ridge, and bronchiolitis obliterans (Popcorn Worker’s Lung Disease).

The consummate achievement in the art of hypochondria goes considerably beyond merely thinking that you’re sick. The ultimate form of hypochondria is thinking you’re dead. A person who thinks he’s dead, but consents to a sort of feigned life is to be enormously admired.

Here we can see how this ultimate hypochondria can be a profound expression of bushido – the traditional code of the Japanese samurai.

This is how Yamamoto Tsunetomo, a 17th-century samurai retainer of the Nabeshima Clan, described the proper attitude of a warrior: "Every day without fail one should consider himself as dead. There is a saying of the elders that goes, 'Step from under the eaves and you're a dead man. Leave the gate and the enemy is waiting.’ This is not a matter of being careful. It is to consider oneself as dead beforehand."

Now there’s an eminently healthy attitude, if I ever heard one.

Are you a hypochondriac? Take our poll.

Comments

I have suffered from severe pain since I was 5 years old.  I would wake up in the middle of the night, screaming and sobbing because my legs felt like they were being crushed.  My pediatrician told my parents that I was simply having more severe growing pains than most children and that I was fine.

As I grew older, I suffered from a rash of medical problems which were always misdiagnosed until something severe happened to make my doctors rethink the problem.  I nearly died after undiagnosed asthma stopped my breathing at school and while I slept, leaving my poor mother worrying by my bedside each night.  I suffered from countless sprained ankles, several of which were so severe that a cast was needed to stabilize the joint.  Hypermobility Syndrome was only diagnosed when I was sent to a rheumatologist, after years of instability and pain.  

It wasn't until I was 20 that I was diagnosed with fibromyalgia, something that it became clear that I had suffered with since I was a little girl.  Since pediatric fibromyalgia is a rare disease, none of my doctors ever thought to consider it and as a result, I have no memory of ever having a pain-free day.

Because of the experiences that I have had with suffering from undiagnosed diseases for most of my life, I find myself worrying over every little bump, every chill, fever, any little difference.  I'm afraid now that there will be something deathly wrong with me and I will die because it will go misdiagnosed or just chalked up to being in my head.

I was robbed a "normal" life because my doctors didn't take the time to listen.  I wish that there was some way to get through to doctors that they need to listen carefully to everything a patient says and play the good diagnostician instead of just hurrying patients along.
From early childhood, I had irrational health fears. I was a precocious reader, and the library was my second home. I was particularly fascinated by medicine, since two uncles and one aunt were doctors. My "doll hospital" was hilariously professional, with charts, "real" diagnoses and all kinds of therapies and procedures.

One day I read about glaucoma (I was nine years old) and suddenly imagined that I saw "rainbows around street lights" (one of the symptoms). It wasn't long before my list of fears had multipled: sleeping sickness, acromegaly, leprosy, and rabies (that was the worst, because there was no cure once symptoms set in, and I was nipped and slobbered on by dogs at least once a week). I would then live in terror of the dreaded symptoms that always spelled doom. My parents laughed it off when I told them about my rabies fears. They thought that would reassure me.

As I got older, my terror focused on cancer of all types ("The seven warning signs" --- I could always come up with at least two on that list). I constantly worried (in secret, of course, because I really knew that all of this was preposterous). Yet, I could never completely reassure myself). There was always a "disease of the week" eating away at all my good times and hopes.

When I discovered the mental illnesses, I became even more frightened --- of schizophrenia especially; and "manic-depressive psychosis", and megalomania and a host of others. I also saw right away that I actually did have some variant of OCD. That shoe really fit. In those days, there was a lot of stigma around visiting a shrink --- which I did anyway. Each time I was reassured, I would be fine for about a day, then some other "condition" would rear its head and the whole thing would start over. I had a whole inner dialogue going --- the fear, the attempts at self-reassurance, the "what-if" that knocked down the self-reassurance, and then the fear all over again. It was like a cycle, around and around in my mind.

The years have sort of blunted my terrors, even as I get older and the probability of actually getting something deadly increases. And I have had a remarkably healthy life despite the anxiety. I wish I could have all that time back that I spent needlessly worrying. Oh... the anxiety also caused me to drink more alcohol than I should have (I avoid it now). But I wouldn't be the first whose imaginary illnesses led to real ones. Isn't the human brain a confounding organ?
I object to being diagnosed a hypochodriac when I was really ill.  For many years I suffered from chronic fatigue, back ache and headaches.  All the doctors I went to failed to check beyond the obvious hypochondria because of low blood pressure and borderline blood test results.  They never discovered that a 20 and 30 year old was having multiple heart attacks.
I suffered from severe back pain for years, and the doctor refused to even give me an x-ray.  By the time he finally did, and it was found that I had a congenital abnormality, I had limped for so long that I had damaged my discs, my hips and my knees...I was only 28.  After that, I was treated like a hypochondriac every time I went to the doctor, because you could see that I was a "frequent flyer".  I am now going to be in pain until I die because of doctor negligence.  Sometimes it pays to push for the treatment you need.  This happens more frequently to women than men, so stand up for yourselves women!
I have suffered from migraines since I was in second grade.  Each year they have gotten more and more frequent, moving from once a month to (nearly twenty years later) every single day.  My life was destroyed because for days on end I could do nothing except curl up in the dark and cry.  Eventually, since there was no physical cause, I was told (at seventeen) that it was all in my head (not the pain though, as that had to be imagined).  It was simply inconceivable that a person would suffer all of the major forms of migraine and get to a point where they just forced themselves to keep going.

Then last year, I was at a new doctor's and I begged him to refer me to a neurologist just to get one last diagnosis.  After one meeting with the neuro. he agreed that the pain was real (hereditary on my mother's side which I already knew) but exacerbated by the over-the-counter medications that I had been taking for years in order to survive.  After a painful detox (no more OTC's for me) the preventative medications began to take effect and for the first time in ten years I went an entire month without pain.

It's sad to me that it was so hard to believe that an 8-y-o could experience pain or my life might have been a great deal different.
I'm 18 years old, female, and I think I'm the biggest hypochondriac in the world.

I've never smoked, taken drugs, or drank a glass liquor more than thrice a year. I love eating fruits and vegetables and I walk a lot but I still am a hypo.

It is one of my goals in life to create an international support group for hypochondriacs like us. If you need someone to talk to who can understand you and help you get through, just send me an e-mail at hypochondriacs@gmail.com

Wishing you a healthy body, mind, and soul!


Nikole
To the one who had multiple heart attacks, how did you find out?
I TOTALLY agree with the last post.  If we are aware of our bodies and understand how they work then we are more likely to know when something was going wrong.  My mother died of ovarian cancer despite going to the doctor with symptoms for years she was dismissed with comments such as 'how odd' (including when she indicated that she had to physically move a lump in her vagina in order to urinate).  I am NOT a hypochondriac but my maternal line is riddled with cancer and my brother and I are some what paranoid because most people in her family have died before the age of sixty from a cancer or tumor related disease.  So we are very careful with our diet, dont smoke, maintain regular body checks etc.
For years I have had pains in my legs, bumps on the shin bone and huge amounts of fluid retention around my ankle and lower leg. I also have headache and vision problems regularly amongst other things such as a skin condition which i had come to accept as 'just part of life'  Doctors had told me 'not to be vain' when I mentioned concerns about my legs, and even laughed when I said the bumps on the bone were painful and I was worried about bone cancer (which is in my family).
I am SO LUCKY because I met a natural health practicioner from Germany.  In Germany naturalheilpraktiker is the same as doctor except they use naturopathic medicine and different diagnostic techniques.
I was with this woman for ten minutes, she told me that my lymphatic system was shot to pieces and that I was high risk of cancer and tumours (this without a family history)  She told me that the oedema in my legs was lymphatic fluid and needed to be drained.  She told me that I had a bowel disorder and my bowel was taking energy from my lungs which is what was causing my skin condition (they are linked in chinese medicine). BBasically these two things indicated that I was well on my way to developing cancer!  She told me I had a severe problem with my liver (which we later worked out was due to the fact I had had malaria 3 times and the first time was mistreated in the UK DESPITE the fact that I told them the correct treatment and even called a medical doctor in east africa to explain to them!) She told me that my spleen was overloaded and that is why I had lack of focus/lack of energy and headaches etc.  She explained to me that in our modern world we are constantly absorbing toxins, what we eat, what we breathe, stress is major etc, and that at some point the body starts telling you - this isnt right.  If you listen to the body at that point there is a good chance of fixing the issue.  Most of us these days are mineral deficient due to the state of the soil our food is grown in and the way animals are raised etc.
So guess what?  With treatment (most of which comes from major recognised german pharmaceutical companies) I now feel much better and have a huge return of energy.  I've lost 2 cm in circumferance from my legs as the fluid moves, and continues to move.  I have no headache, vision difficulties or back pain, my skin is improving.  And guess what - the bumps on my bones are diminishing..........
The sad thing is that doctors do rely overly on tests.  This woman, through chinese diagnostic methods mainly has diagnosed lymes disease, various forms of cancer, chrones disease, thyroid disease, diabetes amongst lots of other things.  She isnt mad though and sends people for scans if there is any element of doubt.  Doctors are so suspicious of this.... thats what I dont understand.  I mean if something makes you better then surely we should be considering it medically?  I wish that all doctors had this kind of diagnostic ability AND this approach to wellness maintainance.  What my health practitioner mandates is the old chinese system, where you get regular wellness treatement, that way you are less likely to become seriously ill.  Its a thought isnt it.  I wonder how many people are actually hypochondriac as 'thinking they are sick when they are not' and how many people are actually listening to their body and are on their way from wellness to illness and dont know what to do about it?
I'm a lazy hypochondriac...heh. That's the best way to put it. When most people think they're dying of a systemic infection, or cancer, or some rare disease no one has ever heard of...they usually visit the doctor. Not me, however. I just wait it out. I guess I figure that I'm either fine, or I'll go when I just can't function anymore...hehe. Or when I'm dead.

That or I just understand that there probably is no serious problem with my health. I do honestly feel quite sick most of the time, but I don't really ever mention it, and it doesn't affect my life unless I'm feeling especially ill. It's definitely not to get attention or sympathy. I think I'm just especially sensitive to the "symptoms of life", and whenever I get fed up, I try and find a cause.

Unfortunately, this cause is most likely being alive, and I don't want to take care of that just yet.
Maybe that's why I'm no longer taken seriuosly by doctors anymore all the while mistakingly assumming that I fit into this category of patients... All the while my health deteriates to the point of being bed ridden, suffering neurologic symptoms totally out of control, pains in my eyes a lot and throughout that I never knew could hurt so tremendously, pain that not even a tylonol, Ibuprofen, nor even a potent prescriptive pain med can alleviate.  Pains that are crippling when or after I eat throughout my gut & back... and the list of symptoms go on...  What to do now?

I'm actually phobic when it comes to doctors, hospitals, clinics,labs,etc...  After braving numerous blood tests and Partial MRI's I'm still treated like it's all in my head.  

But the thing of it is that I Love Life, sports, being so full of energy and feeling like an invincible person at times.  So, why all this fatigue and weakness of my limbs giving way to pain & lifting or holding or grasping simple things like a glass of water for instance.  I've been continually trouble sleeping most nights due to writhing in pain, and discomfort that no pain med seems to penetrate.  So, I'm too scared now to go back to the doctors even after a year & a half after being tossed to the side as though it feels. I try to tough it out most days, but I'm to the point now that I can't deny the inevitable.  I'm currently torn between the disabling symptoms that is taking its toll on me will actually scare me enough into going to see another doctor again.  I don't like doctors & I don't trust them even now more so for sure... especially after reading all of the malpractice and negligence issues that tend to plague all the misfortunate victims mentioned in the previous comments that have needlessly suffered & that had even died after the point of.

I'm not afraid of dying but what I am trully afraid of is ending up with a permantly disabling disease that could've been nipped in the budd so much sooner.  I lost the job I loved after undergoing 7 months of "no diagnosis" that my insurers could've possibly have dealt with in order to at least have been rendered some sort of disability aide and now I can't afford seeing another doctor again as such... And should I say that I hate Doctors for that right now... they do more harm than good when they ignore us & toss us to the side of labeling us all as hypochondriac freaks...

The question is: Do I go see another malpracting & Negligent Doctor again and still in turn remain suffering until the very end?

And such as my poor dear husband feeling totally helpless not being able to remedy this suffering for me as all good loving husbands would do of course... What about the wife & friend he misses (the "Good Ol' Spunky Me").

The truth is I don't want to be a burden to him anymore or any worse than I already am.  He's at a great place in his career now and I want to live a full life functioning together as a whole with him again.  I miss running, playing tennis with him, and the such.
I miss my Life.  I don't want to suffer this way anymore too as I get progressively worse as of late.  

How could someone like me of all people fit into such a category of being considered a hypochondriac.  That has never been like me and I have unfortunately been mislabled as thus even on some of my medical records.  That is not Fair!!!!

I had a test (CA 19-9) done that indicated a tumor with elevated level of 34 early as of last year.
The doctor's last words to me were that it doesn't mean you have cancer and then I recieved a letter in the mail by that doctor refusing to see me as a patient again.  I was so confused.  I was then sent to Yale for more stuff and I was never allowed a follow up visit to learn the results of an invasive procedure.  I tried so hard to find out but I keep being turned away.  I don't get it?  I can't even afford a lawyer or I would have consulted with one already at this time...  What is going on?

Now I'm worse and hurts to type this comment that I need a break from it from time to time. LOL

I have no Idea what is wrong with me and I don't know what to do about it.  I wish that I knew someone who could help me.  But I don't as of now.  I am legally Sane & not mentally Sick at all.  So many things about my physical health right now that need answers... I want to live without pains, and weakness, etc... I want to feel like "Good Ol' Spunky Me" again. Even a double or triple shot of Espresso doesn't cure the fatigue and my Vitamins and supplements and Organic foods can't help me on this one either.

Whatever happened to the HypoCratic OATH: Do No Harm?  They wish I was a HypoChondriac!!! Maybe if its too late & I cease to exist then my husband can sue for medical negligence & malpractice & the such... We have copies of the medical records to back him up on it all at least.  So much for attempting to trust the medical system with all its answers for everything (NOT SO)afterall.  I guess the jokes on me then... just like all the rest of us falsely labeled hypochondriacs!!! One more thing to add:  Since when Did MD's become Mental Specialists in this Farce of a Medical System???
This particular ailment hits medical transcriptionists too you know.  I can't tell you how many times I've typed a piece of dictation and immediately thought, "OH my God, I have the same symptoms".  Amazing what the psyche will do.....
Your blog is interesting!

Keep up the good work!
For three years, I had severe upper back pain. At times it would become so bad that I couldn't walk or stand upright. My doctor at the time diagnosed me with a broken tailbone and heartburn. (WRONG!!)
On a Sunday drive with my husband the pain became severe- waves of pain shot through my chest. I couldn't talk due to the pain, turned pale, started to sweat and couldn't walk. He took me to the ER, where they thought I was having a heart attack. Soon, they changed their mind and refused to give me pain medicine. (childbirth felt better!)
Once the pain subsided, my husband left the room to call his sister. The doctor came in and proceeded to tell me it was all in my head, or maybe I had Nutcracker Esophagus.
The next day, my doctor told me that they would never know what was wrong with me...that I should not waste their time anymore please.
Fed up with the lack of care, I moved back home to seek help. On my first visit to the ER, the Dr took a simple blood test and diagnosed gallstones. It was removed right away...I had an infection and over 50 gallstones!!!
This is me again after my previous posting...
jc, no where special (Sunday, August 03, 2008 12:07 AM)  

...O.K. here it goes... Ever heard of the MMR Vaccine being given to Women over the age of 27 (& I was 30 years of age when inocculated with it twice within two weeks time apart of each the other) & ever heard of being somehow mysteriously exposed to a Deadly Toxic Nerve Agent along with symptoms relating to Multiple Sclerosis?  Could've been nipped in the bud a whole lot sooner... like as in 6 years ago?   But, NOOOOOO!!!   Too late for me now... Those Sadistic Quacks!!! Tried to cover up their crimes against a clueless & gullible patient being me at the time...  All those many Doctors & tests & visits & so many years wasted with them all MisTreating me as an Expendable HypoChondriac!?!... How do you forgive something like that?  I Say you DON'T!!!  Well, I'm Done... Warning to ALL:  Watch out for those who are falsely diagnosing the literally & physically sick & that are not imagining their pain all up in their heads and then being negligently MisTreated as HypoChondriacs!  Justice is in Store whether I am dead or Alive!  A Bone is going to be Picked Now!
My mother went to med school and has driven me crazy my whole life with her hypochondria.. And now I am in my late 20s and have had some depressing diagnosis like skin cancer in my leg and lovely genital herpes.. Now I am turning into her thinking every little symptom is something else terrible. It's consuming...


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Msnbc.com writers and editors will muse upon the wonderfully weird human body and the medical curiosities that make you go huh, ewww or ouch! Looking for informed, unhinged meditations on everything from dubious diseases to recipes for ersatz mucous? Well, this is the place.

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